Long-term health outcomes of people living with spina bifida

Does this fit your business?

This is a CDC research program for organizations that already run or partner with specialized spina bifida clinics: component A funds longitudinal data collection in the National Spina Bifida Patient Registry, and component B implements and evaluates the UMPIRE protocol for young children with myelomeningocele. If you are a small business or other organization with no connection to spina bifida patient care or research data, do not bother applying; the money goes to clinics and research groups,

Best for

Specialized spina bifida clinics already contributing to the National Spina Bifida Patient Registry, Research organizations and universities that can run longitudinal data collection and analysis, Clinics able to implement and evaluate the UMPIRE protocol for young children with myelomeningocele, Tribal, state, county, and city health or education agencies with access to spina bifida patient populations

Not for

Businesses with no connection to spina bifida care, research, or patient data, Organizations without access to a specialized spina bifida clinic or relevant patient population, Applicants seeking general operating funding or unrelated health programs

These are our matcher’s estimates for a typical business in each industry. A real match depends on your size, your state and what you need the money for — check your own fit.

What this funds

Money can be used for

Research, Data collection, Program evaluation, Operating support

Who can apply

Small businesses, For-profit companies, Nonprofits, State and local governments, Colleges and universities, Tribal governments and organizations

Award range

$100,000 – $300,000

Questions about this grant

When is the application deadline?

The application deadline is 2026-10-26.

How much funding can an applicant receive?

Awards range from $100,000 to $300,000. The total program funding is $3,000,000, with about 19 awards expected.

Who can apply for this grant?

Eligible applicants include federally recognized Native American tribal governments, 501(c)(3) and non-501(c)(3) nonprofits, for-profit organizations including small businesses, county, state, city or township, and special district governments, independent school districts, and public, state controlled, private institutions of higher education.

Can a sole proprietor or single-member LLC apply?

The facts do not say. The eligible applicant codes list small businesses and for-profit organizations generally, but they do not specifically address sole proprietors or single-member LLCs, so that is not published.

Can a nonprofit apply?

Yes. Both nonprofits with 501(c)(3) status and nonprofits without 501(c)(3) status (other than institutions of higher education) are listed as eligible applicants.

Summary

CDC funds clinics and research organizations to collect longitudinal data on children and adults with spina bifida in the National Spina Bifida Patient Registry and to implement/evaluate the UMPIRE protocol for young children with myelomeningocele. Eligible: tribal governments, nonprofits, for-profits including small businesses, state/local governments, school districts, and higher education.

About this grant

Who can apply

The listing does not include detailed eligibility text. Check the official listing before you apply.

Topics and uses of funds

Program contact